the Advocacy Group
The Inam Autism Advocacy Group is a non-profit company. The organisation was established to advocate for people with autism with a focus on children and young people. Our main goal is to bring awareness to the existence of this developmental condition in previously disadvantaged and rural communities.
what is Autism?
Autism spectrum disorder (ASD) is a complex developmental condition, signs typically appear during early childhood and affect a person's behaviour and ability to communicate with others. It affects individuals differently and to varying degrees.There is no known single cause of autism but increased awareness and early diagnosis/intervention and access to appropriate services/support can lead to significantly improved outcomes.
access to Treatment
The affordability of treatment is a major deterrent or obstacle for parents raising children on the autism spectrum.Our goal is to raise funds that will enable children to get access to interventions that are evidence based and proven to be helpful in order for children with autism to become independent and live to their full potential.
We are of the view that South Africa is behind in the advancement of treatment for autism. As a result we are passionate about contributing to autism research in the South African context so as to enable better solutions.It is our view that through research, government and medical organisations can provide a better platform for this condition to be treated or managed.
The Inam Autism Advocacy Group was founded by Vezi and Khulani Silwanyana, Verna Hlabangana and Jamila Metadad. Vezi and Khulani are parents to Inam who was diagnosed with autism at 18 months. Their journey and discovery inspired a vision to contribute towards treatment and understanding of autism in the South African.